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++friendship as freedom++
++interdependencies++
1977
504 sit in
black panther and disability justice came together and the

One of the 504 Sit-in participants Corbett Joan O’Toole shared, “At that time in history, there was simply no access—no right to an education, no public transit. You couldn’t get into a library or city hall, much less a courtroom.” Disabled people wanted to see the government committed to disability inclusion and access. The disabled activists warned that if Joseph A. Califano Jr., who served as the Secretary of Health, Education, and Welfare during President Jimmy Carter's administration, didn’t take action by April 4th, nationwide protests would ensue.

Most of the protests happening across the country ended that day. However, the story in San Francisco was different. Following the San Francisco rally, nearly 150 people with disabilities streamed into the Health, Education, and Welfare (HEW) Federal Building. They began climbing to the fourth floor where the HEW regional offices were located. Over 120 activists occupied the building, and they refused to leave the federal building until their demands were met, even when threatened with arrest and eviction.

The disabled protesters worked closely with and received support from a wide range of organizations and individuals, including labor unions, religious groups, and civil rights activists. Groups that supported the 504 protesters included the Black Panther Party, Glide Memorial Church, Gay Men’s Butterfly Brigade, Delancey Street, the United Farm Workers, the Gray Panthers, Salvation Army, and more. Because of this, the 504 Sit-in is considered an important moment for cross-movement organizing.

https://disabilityrightsflorida.org/blog/entry/504-sit-in-history

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++technovernacular creativity++

vernacular object design from Cuba: technological disobedience
https://www.ernestooroza.com/category/technological-disobedience-project/

-- improvising furniture - Ernesto (?)
what facilitates this need
DIY or DIT accessible to accessibility
anarchism and accessiiblity - what would accessibility look like from an anarchist perspective
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anarchism - alternative cultures - during Covid, a lot of people who had more of an anarchist or socalist brain - regulations became 'ableist' -

autonomous freedom vs. 'health'

++friendship as freedom++
++interdependencies++
++epistemicide++

"Freedom and friendship used to mean the same thing: intimate, interdependent relationships and the commitment to face the world together. At its root, relational freedom isn’t about being unrestricted: it might mean the capacity for interconnectedness and attachment. Or mutual support and care. Or shared gratitude and openness to an uncertain world. Or a new capacity to fight alongside others. But this is not what freedom has come to mean under Empire. "

“Friend” and “free” in English … come from the same Indo-European root, which conveys the idea of a shared power that grows. Being free and having ties was one and the same thing. I am free because I have ties, because I am linked to a reality greater than me.”[49]

A few centuries later, freedom became untied from connectedness. The seventeenth-century philosopher Thomas Hobbes imagined freedom as nothing more than an “absence of opposition” possessed by isolated, selfish individuals. For Hobbes, the free man is constantly armed and on guard: “When going to sleep, he locks his doors; when even in his house he locks his chests.”[50] The free individual lives in fear, and can only feel secure when he knows there are laws and police to protect him and his possessions. He is definitely he, because this individual is also founded on patriarchal male supremacy and its associated divisions of mind/body, aggression/submission, rationality/emotion, and so on. His so-called autonomy is inseparable from his exploitation of others.

When peasants were “freed,” during this period, it often meant that they had been forced from their lands and their means of subsistence, leaving them “free” to sell their labor for a wage in the factories, or starve. It is no coincidence that these lonely conceptions of freedom arose at the same time as the European witch trials, the enclosure of common lands, the rise of the transatlantic slave trade, and the colonization and genocide of the Americas. At the same time as the meaning of freedom was divorced from friendship and connection, the lived connections between people and places were being dismembered.

From Joyful Militancy — Chapter 2 : Friendship, Freedom, Ethics, Affinity

thought things would be more social - this is not the anarchism that I need

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++interdependencies++
how can you do open source medicine? -- access to medicine and the DIY aspect of it --

imperialism & empiricism --> not the same things
empires and how people - the power structures you are in, an academic look into it
how big farma holds patents

Helminthic therapy wiki:

"Solid scientific evidence shows that millions of years of co-evolution have created a symbiotic relationship between humans and helminths that provides us with essential immune regulation. "

"This site presents the extensive research supporting this practice, along with more than a thousand personal stories demonstrating it's effects, plus tips to help manage the therapy and optimise its benefits.
This is a collaborative, crowd-sourced site administered by volunteers with no commercial interest in the therapy. "

bodies getting sick from the lack of exchanges with the environment
improving health through such paradigm cannot be accomplished through a capitalist economy
solidarity and alternative networks are necessary to support people's healing outside a capitalist framework

https://www.helminthictherapywiki.org

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need for exclusion and invisibility
non fitting within standards (standards enforce normalcy)

++anti-assilimationism++ within disabilities: don't put us in your burning house
against inclusion as a paradigm
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++friendship as freedom++
++interdependencies++
++Care work++ - leah lakhsmi piepzna samarashina

What does it mean to shift our ideas of access and care (whether it’s disability, childcare, economic access, or many more) from an individual chore, an unfortunate cost of having an unfortunate body, to a collective responsibility that’s maybe even deeply joyful? What does it mean for our movements? Our communities/fam?
Ourselves and our own lived experience of disability and chronic illness? What does it mean to wrestle with these ideas of softness and strength, vulnerability, pride, asking for help, and not—all of which are so deeply raced and classed and gendered? If collective access is revolutionary love without charity, how do we learn to love each other? How do we learn to do this love work of collective care that lifts us instead of abandons us, that grapples with all the deep ways in which care is complicated.

Care Work: Dreaming Disability Justice by Leah Lakshmi Piepzna-Samarasinha

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procedures and regulations that block mobility needs
applying for travelling (takes weeks)
'social taxi' needs to do rounds, takes more time becuase they need to pick up more people on the round

absence of means & urgencies of NOW - a really close to how you would

-- the prototpype that gives you the way to think about it NOW to then improve on the prototype --

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Tecnology feels very far
Accessibility and performance
far from the mangage used

couldn't access a space body breaking down
needed rst and something right now
- digital residency; did a simple website
using cargo
took a year to realise and making the site
be somewhere even when you can not be there

we're in the soft space now

art and technology and access ??

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impossible to teach students in such a short period of time, what is the internet, what is the technology, what is the military complex, how does the internet connect to the cables etc.

making a book not equal a website
contrast, alt text, font sizes, image sizing etc

the assignment is not fair
hot glue, cargo - template engines
you can't assume that everyone has a computer, its not the case

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Who becomes an expert
community oriented prototypes

I'm making it work very much not from an institution

Just get stated because we need it now is not in par with what institutions usually want.

if your work is around access, then it gets seen as an 'access consulting' moment and not the artstic performance that it actuallu is.

Some refs:

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part 2

vernacular technologies that we want to look at
or speculative technologies we could think of (repurposing for example)

what do we need, how to do that with the stuff that is available?

what does vernacular tehnologies mean in terms of closer

question to look into vernacular word

"vernacular" coming from being native, "home-born slve, native", native speech or language of a place in relation to language.
Vernacular anything means that something is much related to the place/context in which it is deployed

from my notes from the book:
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this one? (yes) https://mitpress.mit.edu/9780262542661/techno-vernacular-creativity-and-innovation/

How do you deal with negativity or bad feelings/discomfort/resistance/conflict etc
when there is no space for it.

As a need that we could make a technology for
--> proposal: everyone embroiders something as a way to create a mental space to follow the thinking

harvesting practice from Lumbung

indicating feeling and frustration is one thing, the second is doing something. How do we flip things collectively

literally saying bye bye to the problem
wish tree of Yoko Ono

if there's something wrong - you make a ticket

complaint by Sara Ahmed
you become the problem when you name the problem
instead of resolving the problem,
how to bury the complaint and discourage the complainer
---> a technology that allows you to make a complaint without becoming visible

collective responsibilities - committees that work on different things, power dynamics and access issues
now about technoenabling - rather like technical sabotage to provoke change

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Frankie - virtual persona - embodied all the problems of the classroom

making things concrete, making the exercise about the worksession, but this would be quite vulnerable

two needs:
- complaining but not ending up being gaslighted as being the problem
- dealing with negative feelings when there is no space for them

when organising something and you are a facilitator having to handle these situations
ranting frustration - reception of negativity

obstructing technologies from doing something rather than technology that is always in your favor

Very far away from experience and culture:
stories of community success, or when things have worked out well and everyone has access. These are not very common

tired with rehearsal of ableism around disabled people

from success stories you get ideas on how to tackle situations

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