__NOPUBLISH__

Welcome to a splinter etherpad sheet!
This pad is only reachable locally within the range of the shared portable server. 

To prevent this pad to appear in the 'etherdump' list of pads, you can add the word __NOPUBLISH__ anywhere in the text.

This pad installation includes a system to mark pads to include specific keywords, 'snowpoles'. 
When ++SNOWPOLES++ are used, pads will be tagged with a certain keyword, for future re-editing or publishing.
Worksession Drempel Drempel Drempel
Saturday 16 - 03 - 2024 - Day 5

12:00: Welcome - brunch


13:00: ++ Ren -Britton- Towards - life - thriving - relations ++

Try to deal with different scenarios when you deal with / are in an institution

use of word mad, an example in this book "black madness, mad blackness"
https://www.dukeupress.edu/black-madness-mad-blackness

D/deaf
https://www.startasl.com/what-does-d-d-and-d-deaf-mean-in-the-deaf-community/

Trans*crip
Trans*/crip décrit l’intersection entre les vies trans et les vies handies. Cette intersection est une réalité sociologique importante (les personnes trans ont 2 à 4 fois plus probabilité d’être handies que le reste de la population) tandis que les personnes handies sont souvent éjectées hors du système binaire de genre (comme l’attestent les signes sur les toilettes : homme, femme, personne à mobilité réduite). Trans*/crip est aussi une manière de parler d’alliance : contre les abus médicaux, contre l’imaginaire de la guérison, contre les contraintes de la binarité (soit valide soit malade, soit garçon soit fille), à la faveur de politiques qui refusent la contrainte à la (re)productivité.

Trans*crip
Trans*/crip describes the intersection between trans and disabled lives. This intersection is an important sociological reality: trans people are 2 to 4 times more likely to be disabled than the rest of the population; while disabled people are often cast out of the binary gender system (as exemplified in the restroom signs: M, F, wheelchair user). It’s also a way of talking about alliance: against medical abuses, against the imaginary of healing, against the constraints of binarity (either able-bodied or sick, either boy or girl). Trans*/crip focus on politics that refuse compulsory productivity as well as compulsory reproductivity.

From: https://www.multitudes.net/transcrip/

+++++
Scenarios excercise

//Imane and dona

Scenario:
When starting an event everyone speaks about how they visited their family for a recent holiday. You are estranged from your family and spent the day alone.

We advocate to the city and different funding bodies to provide the means so different spaces c an be kept open during different holiday moments.
Moreover, i nside our institution , when the is a public holiday that inloves some familial gatherings , we look out for events (public or not, things to do together or not) that are happening in the city to share them during meeting or via a specific email. N ot target one specific individual but to share it as general information in solidarity with those who might not have good family ties and might end up spending the day alone or isolated.

We find a comunal  way of living together ( like a farm ..)
We share all the means of care. W e open the boundaries of our families in which care becomes a collectivized practice. T here is no such things as nuclear family where you have parents and kids and such but we can all take different roles depending on needs and wishes.
We can throw out the (western) calendar structure, no more mothers day or christmas (controversial haha) and we invent our own calendar of festivities. [  https://en.wikipedia.org/wiki/French_Republican_calendar we are on the 26th of the Windy month ]

W e organise collective readings around the book " Abolis h family" by S ophie Lewis.
W e critisize the privilege that is inherent in the classical family nucleus which provides a lot of benefits and ' glory ' in current society. I t is still very romanticised as the safe dreamy thing that people strive for , i t is seen as a positive achievement.  People with no kids always have to justify why for example.

We decide to add in our working rules a new point: we cannot speak about families during collective meetings and events.

We decide to get in touch with other organisations and insitutions and see if we can built a network of hosting peers. We look into how the city could provide more welcoming events and spaces for people who are alone. We also try to be more  aware on everybody family situations and to adjust certain modes of working when needed.

+++++

//ahnjili and peter

Scenario: Your institution works with online etherpads, they are a great open source collective note taking infrastructure. You want to start collaborating with blind people and notice that they are not accessible for folks accessing technology with screen readers.

contact other cultural institutions and other groups/spaces to ask for help because they might have done some work or we organise to find a solution together 

create a totally new note taking platform that would be compatible with screen readers 
(note shaking! ^^)

having a // etherpad, you use another blind-friendly etherpad, so forking is the proposal 
peterpaaaaaaaad

crowdfunding for improving both etherpads and screen readers 

we work towards a collective strive to improve the technologies and those who don't want to, we shame them; writing  a manifesto that imposes some ideas, it's not proposing 
hiring cola marketing team? 
[later we can watch some pepsi counter-insurgency]


//Martino & Wendy
scenario: Your institution has decided to ensure that there is always the chance to have captions turned on for all video calls, this supports access for Neurodivergent, D/deaf and anyone learning the spoken language of these calls. You look around at what is currently on offer from various softwares and notice there are no open-source options available.

short term: we move everything to zoom, all is captioned all the time - 
long term: we work with ligue des droits de l'humain and we mobilize some eu money to develop an open source alternative

[here our scenario moved to live presence to asl translation]
we rob a bank to be able to always to pay sign language translator and we all take the train instead of having online set up 

we all learn 
sign language we don't need to hire anyone 

we all learn sign language and we only speak in sign on Tuesdays

we prepare a setup that allows parallel transcriptions in the same setup:


//elodie+kristien

scenario
in the museum there is a mission at dr.guislain museum, coming from a realization that the museum is about psychiatry and hte team wnted to change that so htat the museum becomes more "in" or "with" psychiatry..
experience of psychiatry shifting. thought different strategies, close to what is tried already

some people from the hospital are patients who have to deal with depression/spychotic period and they also work in t h e museum. some people are retired and then can volunteer in the museum. 
equal rights would mean everyone has a contract in the museum,

https://dementia-platform.jp/en/article/436/

artistic direction proposing to make a presentation room where all objects about psychiatry  are able to be changed, added to, removed by the visitors.
removing the chapel! opening up the gardens again! YEAH
bring your sledgehammers to the revolutionary worksession

not comfortable to work with. other people make the expo

following the anti-psychiatry movement,  closing down the hospital, create other spaces

communication done right working together with people with addiction problems, making a podcast together.
chapel can be just opened up partly, not tear down completely


how to relay?
how to continue things in view of the worksession?

> with dr.guislain, meet before the summer
> inform each other of things that might be interesting that come to memory in the next weeks? -- f.ex podcast ^^

+++++
++resources-to-think-on-and-with-access++
also podcast by https://www.ugent.be/psync/nl/wie/vanheule_stijn
+++++